The CAPABILITY Report
"Model Approaches for Capacity Building for the Translation of Genetic Knowledge into Practice and Prevention"





1.

Introduction and Overview: The CAPABILITY Project for Capacity Building for the Translation of Genetic Knowledge into Practice and Prevention (I. Nippert, A. Christianson)



(Document)
 


2.

 Recommendations: Moving from Evidence to Decisions for Capacity Building for Medical Genetic Services  (I. Nippert, U. Kristoffersson, J. Schmidtke, A. Kent, A. Christianson, R.K. Raouf, C. Barreiro)



(Document)



3.
 		 Health Needs Assessment for Medical Genetic Services in Middle- and Low-Income Countries (A. Christianson, R. Zimmern)



(Document)



4.

 A Comparison of Criteria for Clinical Validity and Utility in National and International Frameworks  (P. Javaher, J. Schmidtke)



(Document)






Annex 1
C. Barreiro: Needs Assessment CAPABILITY Argentina



(Document)



Annex 2  R. K. Raouf: Genetic Services in Egypt: Current Situation and Needs Assessment



(Document)



Annex 3

 A. Christianson: Health Care Needs Assessment for Medical Genetic Services in Greater Sekhukhune, Limpopo Province, South Africa



(Document)



Annex 4

 C. Barreiro et al.: CHACO Outreach Project: The Development of a Primary Health Care-Based Medical Genetic Service in an Argentinean Province



(Document)



Annex 5

 R. K. Raouf: Community Education in Health Aspects of Genetics: A Capacity Building Project



(Document)



Annex 6 A. Christianson: Greater Sekhukhune -CAPABILITY Outreach Project (GraSCOP)



(Document)



Annex 7

 J. Schmidtke, F. Meier: Public Private Partnership, Background Material



(Document)



Annex 8       

 CAPABILITY Working Group



(Document)





Demonstration project reports by country




Type Titel Author



CAPABILITY Argentina - CHACO Outreach Project   
(Document)
Cristina Barreiro et al. 




CAPABILITY Egypt - Community Education in Health Aspects of Genetics:
A Capacity Building Project            
[Document)    		 R.K.Raouf



CAPABILITY Germany - CAPABILITY Public Private Partnership
Demonstration Project
Background Material        
(Document)		 Jörg Schmidtke and
Florian Meier



CAPABILITY South Africa - Greater Sekhukhune- CAPABILITY  outreach project
(GraSCOP)
(Document)

 Arnold L. Christianson



CAPABILITY Documents




Type Titel Author



Needs Assessment CAPABILITY Argentina
(Document)		 Cristina Barreiro



Genetic Services in Egypt - Current Situation and Needs Assessment
(Document)		 Randa Kamal A. Raouf



Health Care Needs Assessment for Medical Genetic Services in Greater Sekhukhune, Limpopo Province, South Africa
(Document) 		Arnold L. Christianson



CAPABILITY Subcommittee 1 Report
A comparison of criteria for clinical validity and utility in various national and international frameworks 
(Document)		 Jörg Schmidtke on behalf of Subcommittee 1



CAPABILITY Subcommittee 2 Report
Health Needs Assessment for Medical Genetic Services in Middle- and Low-Income Nations
(Document)		 Arnold L.Christianson
and Ron Zimmern on behalf of Subcommittee 2



CAPABILITY Documents
Type Titel Author
MARCH OF DIMES FOUNDATION - GLOBAL PROGRAMS
Global Partnerships for Perinatal Health Network (GPPHN) Building Global Networks of Experts in Lower-Income Countries to Improve the Health of Women, Mothers, Newborns and Babies Summary of 17-18 December 2007 First annual meeting, White Plains, NY, USA and updated proposals June 26, 2008
(Document) 		March of Dimes Foundation Global Programs
EuroGentest
Genetic Testing in Europe
A network for test development, harmonization, validation and standardization of services
Presented at the 19th Annual Meeting of the German Society of Human Genetics April 8-10, 2008
(Document) 		Jean-Jacques Cassiman
Validation of methods in DNA diagnostics an overview of EuroGentest activities
Presented at the 19th Annual Meeting of the German Society of Human Genetics April 8-10, 2008
(Document) 		Milan Macek